Joined: 10/01/2022

Post #46230 - 13/01/2022 12:27:34

Kaftrio drug 'chance to live a more normal life'

Kaftrio drug 'chance to live a more normal life'

 

 

A "life changing" drug for people with cystic fibrosis has been approved for use for eligible children in Northern Ireland according to the charity Cystic Fibrosis Trust.

 

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This has yet to be confirmed by the Department of Health.

 

The charity said Kaftrio will soon be available for six to 11 year olds.

 

Lynsey McMaw, from Carrickfergus in County Antrim, said the will hopefully give her daughter "the chance to live a more normal life".

 

"It's fantastic news, we've been waiting to hear this obviously since it was approved last year for older patients," Lynsey McMaw told BBC Radio Ulster's Good Morning Ulster programme.

 

"This is fantastic knowing that hopefully Brooke will have less hospital admissions going forward."

 

Cystic fibrosis (CF) is an inherited disease that causes thickened mucus to build up in the lungs as well as pneumonia and bronchitis.

 

Kaftrio, a three-drug combination, has been shown to be effective at helping ease symptoms of CF and improving quality of life.

 

Experts have said nine in 10 people with the genetic condition could benefit from it.

 

Brooke McMaw will turn six in June so should be eligible for the drug from then.

 

Her mother said that while there is no cure for cystic fibrosis, the drug was "the next best thing".

 

"The younger she is, the less damage there is to her lungs, so the sooner we get something like this the more preventative it is," she said.

 

"As she gets older, her therapies and things won't be as intense for her."

 

Ms McMaw said Brooke loves swimming, but at the minute is limited by her condition.


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